Books/Media

Living well with dementia : the importance of the person and the environment

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CRC Press 2014

Features

  • CPD accredited: helping you to achieve your points effectively for revalidation
  • An evidence-based, thought-provoking overview of  the ever-enlarging field of ‘living well with dementia’
  • Highly practical and unique – assimilating theory and patient -centered practice
  • Covers topics such as communication and living well with dementia, home and ward design, assisted technology, and built environments successfully preparing readers for real-life caring
  • Fully referenced with case studies, tables and charts help to illustrate key points and ensure a strong foundation of knowledge is gained

Summary

This unique guide provides a much needed overview of dementia care. With a strong focus on the importance of patients and families, it explores the multifaceted meaning behind patient wellbeing and its vital significance in the context of national policy. Adopting a positive, evidence-based approach, the book dispels the bleak outlook on dementia management. Its person-centred ideology considers fundamental areas such as independence, leisure and other activities, and end-of-life care – integrating the NICE quality standard where relevant. It also places great emphasis on patient environment including practical home and ward design, the importance of gardens, and sensory considerations. All public and health care professionals will be stimulated by Rahman’s outstanding assimilation of theory and practice. Patients, their families and friends will also find much for inspiration and practical assistance.

The Amazon UK page is here.

Reviews

‘Amazing … A truly unique and multi-faceted contribution. The whole book is infused with passion and the desire to make a difference to those living with dementia…A fantastic resource and user guide covering topics such as communication and living well with dementia, home and ward design, assisted technology, and built environments. Shibley should be congratulated for this unique synthesis of ideas and practice.’
Professor John R Hodges, in his Foreword

‘Outstanding…I am so excited about Shibley’s book. It is written in a language that is easy to read, and the book will appeal to a wide readership. He has tackled many of the big topics ‘head on’, and put the person living with dementia and their families at the centre of his writing. You can tell this book is written by someone who ‘understands’ dementia; someone who has seen its joy, but also felt the pain…Everyone should be allowed to live well with dementia for however long that may be, and, with this book, we can go some way to making this a reality for all.’
Sally-Ann Marciano, in her Foreword

This book was judged the Best Book of the Year by the BMA Awards in 2015 in the health and social care category.

2015 BMA Medical Book Awards programme-1-1

Report from BMA Medical Book Awards 2015

All public and health care professionals, patients, their families and friends

This unique guide provides a much needed overview of dementia care. With a strong focus on the importance of patients and families, it explores the multifaceted meaning behind patient wellbeing and its vital significance in the context of national policy. Adopting a positive, evidence based approach, the book dispels the bleak outlook on dementia management. Its person-centred ideology considers fundamental areas such as independence, leisure and other activities, and end-of-life care – integrating the NICE quality standard where relevant. It also places great emphasis on patient environment including practical home and ward design, the importance of gardens, and sensory considerations. The objective is to examine the number of people in the UK who currently have dementia and the cost that this places on the health care system. In addition to analysing the scale of this condition, it touches on the experiences of a person with dementia and how this effects their family, friends and those caring for them in an effort to prepare those facing this diagnosis. This unique guide provides a much needed overview of dementia care. Offers a highly practical and unique assimilation of theory and patient-centred practice.

“I would recommend this book 100%. It just makes sense to read. This will appeal to so many professionals going to be involved in the care of the elderly. And anyone who is doing research in this field should go through this book too. It brings together so many aspects of dementia care under one setting: an amalgamation of resources and guidelines. This book is targeted at anyone who is interested in public health, end-of-life care, dementia management and anyone in geriatrics really. It is a contemporary evidence-based textbook which brings together the concept of ‘wellbeing’ in the field of dementia care. This book is a really good read for any clinician who deals with elderly patients as it really opens your eyes to all the outside factors which play such a massive role in the care of the patient, such as the wellbeing of the carer, the psychological aspects of care, the public health perspective, economic aspects and so on. It also gives really thorough reference lists for every chapter so that it is very easy to go in to read a chapter and then look up the data to support it. It is an adequately easy read, there are many definitions. The layout of the book makes it easier to look up specific chapters without having to read everything before, but it also reads well if you read the whole book. I think this book would work well for anyone who is writing a dissertation, public health, or anyone who is doing a presentation on this topic as it is a very resourceful and complete book. The book really goes through all its objectives in a very clear and thorough manner. It is about the multifaceted approach to dementia care, and how to maintain this wellbeing of the patient, care changes, as does requirements and expectations as the disease progresses. As clinicians there are many things we can take from this book and apply to daily practice. For example, when a patient is been seen, it would be worthwhile making sure that the carer/family member is also managing as they found that the ‘psychological health of carers of people with dementia was impaired with social interaction and recreation most affected’.

It is also a very good reminder for anyone who already practices well. The thing with dementia care is that, medical textbooks only really cover the types, pathologies, diagnosis and management where, really the contents of the whole of this book comes under a small paragraph as ‘social care/financial care/respite care/end-of-life’. But in reality, it is this whole idea of the wellbeing of the patient and their support network that we are working towards, and it does not stop at diagnosis and sending them away with a few things to take and do. This book opens your eyes how extensive dementia care can be. It is a complete text on the multifaceted approach to wellbeing although order to make it 100% complete, maybe a chapter on the classic dementia signs, symptoms, progression, pathologies, diagnoses, treatments.”

Living better with dementia : good practice and innovation for the future

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Adopting a broad and inclusive approach, Shibley Rahman presents a thorough critical analysis of existing dementia policy, and tackles head-on current and controversial topics at the forefront of public and political debate, such as diagnosis in primary care, access to services for marginalised groups, stigma and discrimination, integrated care, personal health budgets, personalised medicine and the use of GPS tracking. Drawing on a wealth of diverse research, and including voices from all reaches of the globe, he identifies current policy challenges for living well with dementia, and highlights pockets of innovation and good practice to inform practical solutions for living better with dementia in the future.

A unique and cohesive account of where dementia care practice and policy needs to head, and why, and how this can be achieved, this is crucial reading for dementia care professionals, service commissioners, public health officials and policy makers, as well as academics and students in these fields.

Review

Shibley Rahman follows his first brilliant book on dementia with this fascinating publication, containing insight and empathy in equal measure. This book will help readers – health professionals and the public alike – to understand people in their lives with dementia, guiding you through everything you ever wanted to know about dementia and could possibly want to ask. Shibley guides you through the challenges of caring for people and living with dementia. He doesn’t shy away from the topics that are uncomfortable, but he also gives space to examples of good living and practice that leave the reader with hope and positivity. -Jenni Middleton, editor, Nursing Times

I congratulate Shibley on writing a book that brings together so many of the challenges facing people who are living with dementia, their families, and professionals from many different disciplines, and takes them forward in a critically thoughtful way. This is a book that truly points the way to a future where living better is a reality for everyone affected by dementia. -Beth Britton, Freelance Campaigner, Consultant, Writer and Blogger

I commend Shibley for this valuable addition to the current thinking and discussion on what it is to live with dementia. This text builds quite significantly on his original work and continues to challenge professionals on issues of importance for families affected by dementia. I find his frank and open style refreshing, unreserved in his willingness to question both the semantics used in practice and assumptions that are too easily made on what it might be like to live with dementia. -Karen Harrison Dening, Director of Admiral Nursing, Dementia UK

This new book is an immaculately researched guide to living with dementia in England in the 21st century, covering the subject from policy to lived experience, but always with consideration and compassion. There is no better introduction to the challenges and complexities that dementia brings to individuals, families and society. -Geoff Huggins, Director of Health and Social Care Integration, Scottish Government

This book is informative and challenging in equal measure. It not only provides a thorough analysis of the issues currently facing dementia care, but it also offers a refreshing and thoughtful critique of the many challenges. Each chapter carefully combines research evidence, practice issues and policy influences, and contextualises these within the experience of those living with dementia, including their carers.

Whilst this book is complex and thought-provoking – I believe it is a highly welcome counterbalance to current thinking on how to improve the lives of all those who are affected by dementia. It will force the reader to challenge their own thinking about dementia, not just as an illness but as a social construct, and as such I would highly recommend it.

-Rachel Thompson, Professional & Practice Development Lead for Admiral Nursing, Dementia UK

Shibley Rahman follows his first brilliant book on dementia with this fascinating publication, containing insight and empathy in equal measure. This book will help readers – health professionals and the public alike – to understand people in their lives with dementia, guiding you through everything you ever wanted to know about dementia and could possibly want to ask. Shibley guides you through the challenges of caring for people and living with dementia. He doesn’t shy away from the topics that are uncomfortable, but he also gives space to examples of good living and practice that leave the reader with hope and positivity. –Jenni Middleton, editor, Nursing Times

This is a well-written, extensively researched, easy to read and important book for anyone interested or working with dementia.
Rating: Highly recommended.

-Fenella Lemonsky, mental health service user researcher, Mental Health Today

I would highly recommend this book to anyone who is interested or has contact with people living with dementia.

A particular strength of this book is the connection of policy to practice and practical implications. There are a number of examples where good practice can help to inform practical solutions for the future, making this a book that has value and use on many levels. A further asset is the conclusion chapter. This excellent summary draws everything together from the previous chapters under key themes and really helps to pull this book together.

I would highly recommend this book to anyone who is interested or has contact with people living with dementia; health and social care professionals, public health workers, service commissioners and researchers and students in this field. This is also a book that would be useful to members of the general public as well.

-Lynne Partington, head of research, Evaluation and Technology, The End of Life Partnership, Cheshire, Nursing Times

The Amazon page is here.

Further media

Review of ‘Living better with dementia: good practice and innovation for the future’ in Nursing Times

[pdf-embedder url=”http://dementiasoc.org.uk/wp-content/uploads/2016/06/Living-Better-with-Dementia-Book-review-Nursing-Times.pdf”]

Chapter 24.4.2. on Alzheimer’s Disease and other dementias – from the current Oxford Textbook of Medicine from Prof John Hodges

[pdf-embedder url=”http://dementiasoc.org.uk/wp-content/uploads/2016/06/shibley-rahman-john-hodges-dementia-chapter-g8-dementia-summit1.pdf”]

Article on specialist nurses in Nursing Times from Karen Dening and Dr Shibley Rahman

[pdf-embedder url=”http://dementiasoc.org.uk/wp-content/uploads/2016/06/200416_The-need-for-specialist-nurses-in-dementia-care-.pdf”]

 

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