The aim of this event is to celebrate the successful publication of my book “Enhancing health and wellbeing in dementia: a person-centred integrated care approach” by Jessica Kingsley Publishers on 19 January 2017.
The presentations for my book launch are finally confirmed as follows. This is a free event, private by invitation only, free and with no funding. All places have now been finally allocated.
A book signing will take place at 1 pm. Copies of Jessica Kingsley Publishers books will be available on the afternoon, including Kate Swaffer’s “What the hell happened to my brain?” (Jessica Kingsley Publishers, 2016). I will ensure that, if I achieve permission from the relevant parties, that items from the afternoon are published on Vimeo after the event.
I am delighted to be joined by Kate Swaffer as well as 49 other delegates.
1.00 Book signing
1.40 Introduction to afternoon presentations
Lisa Rodrigues CBE, writer, coach and mental health campaigner, www.LisaSaysThis.com
1.50 Enhancing health and wellbeing in dementia: a person-centred integrated care approach
2.10 Co-production, human rights and citizenship
Alison Cameron, citizen journalist and activist
2.30 Technology and supporting well
Maneesh Juneja, Digital Health Futurist, MJ Analytics
2.50 Living alone at home, Jo Moriarty, Senior Research Fellow and Deputy Director, SCWRU
3.10 Care homes and promoting wellbeing
Yvonne Manson and Joe Walker, Dementia consultants, Balhouise Care Group
3.30 Networking Break (with afternoon tea and biscuits)
3.50 Preventing excess disability through psychological approaches: a clinical psychologist’s view
Reinhard Guss, Chair, British Psychological Society, Faculty of the Psychology of Older People
4.10 Introduction to person-centred acute care in hospitals
4.20 Acute hospitals and caring well: a clinical nursing specialist’s view
Lucy Frost, Dementia lead, Sussex Community NHS Trust
4.40 Hospices and dying well, Sarah Russell, Head of Research and Clinical Innovation Hospice UK
5.00 pm Discussion
One of the questions asked in the final scope of the new NICE guidance currently in development [please see below] is, “How should care be arranged to optimise the health and wellbeing of people living with dementia and their informal carers?” This will be the question for our 30 minute discussion in my book launch.
I am privileged that the discussion event will be chaired by friend and colleague Kate Swaffer, finalist in this year’s Australian of the year competition, CEO and co-founder of Dementia Alliance International, and member of the World Dementia Council.
There are fifty delegates in attendance, including myself, with a very wide range of backgrounds and experiences all relevant to the dementia field. An invitation to attend was sent out and tickets were allocated on a first come first served basis. A waiting list was in operation. There was no problem in filling the places as this free event was massively oversubscribed.
I feel that I have been able to cover a huge amount of material relevant to English dementia policy, including in my previous books “Living better with dementia: good practice and innovation for the future” (Jessica Kingsley Publishers, 2015) and “Living well with dementia: the importance to the person and the environment” (CRC Press, 2014). I was honoured that my very first book won best book of the year award for health and social care in the BMJ Awards in 2015.
Reflecting best practice
The NICE guideline “Dementia: assessment, management and support for people living with dementia and their carers” currently in development will update the NICE guideline on Dementia (CG42).
The final scope is published here.
The key themes of this guidance mirror closely my new book ‘Enhancing health and wellbeing in dementia: a person-centred integrated care approach’, published by Jessica Kingsley Publishers in January 2017.
They are, as stated in the Final Scope:
1. Ethics, consent and advance decision-making
2. Training and development of health and social care staff
3. Recognition (signs and symptoms, risk factors)
4. Assessments for suspected dementia
5. Diagnosing dementia
6. Slowing the progression of dementia
7. Identifying dementia subtypes
8. Intercurrent illness in people living with dementia
9. Comorbidities and multimorbidities
10. Risk management and how it can support people living with dementia to avoid harm and maintain independence
11. Interventions to maximise the health and wellbeing of people living with dementia who experience changes in cognitive function
12. Interventions to maximise the health and wellbeing of people living
13. Assessing the needs of carers
14. Psychosocial interventions for carers of people living with dementia
15. Integrated health and social care
16. Inpatient services
17. Palliative care, pain relief and care at the end of life for people living with dementia